Welcome to the Exceptional Nurse Blog! I am Donna Maheady, EdD, ARNP, founder of www.ExceptionalNurse.com, the nonprofit resource committed to inclusion of people with disabilities in nursing. We facilitate inclusion of students with disabilities in nursing education programs and foster resilience and continued practice for nurses who are, or become, disabled. We celebrate abilities, share resources and examples of nurses with disabilities who work with and without accommodations.
From sacral agenesis to ALS, Susie Pratt, RN is dealing with it!
Susie Cutino Pratt wrote chapter 4 in my book, The Exceptional Nurse: Tales from the trenches of truly resilient nurses working with disabilities.
In the chapter,"Taking the first step...nursing with sacral agenesis", Susie shares her journey. She wrote about her parents and her mother's "chronic sorrow". She also discussed the support and encouragement she received from nurses who cared for her as a child. In spite of obstacles, she landed an interview with the director of the Nursing Department at Long Island University. Over the years, she held many different nursing positions including teaching practical nursing students.
Now, Susie is bravely fighting
amyotrophic lateral sclerosis (Lou Gehrig's disease) with treatment from Massachusetts General Hospital's ALS Clinic.
ALS patient Susie Pratt with her husband Jim, who travel from Middlebury, CT for her treatment at the MGH ALS Multidisciplinary Clinic: “I’ve been a nurse for 40 years. I was born with sacral agenesis, so to get ALS too....it doesn’t make sense. But I’m dealing with it. The people here are amazing. It’s encouraging.”