Saturday, September 14, 2024

Army veteran, Reggie Santiago, receives Daisy Award for being extraordinary nursing student

 

ECU News Services reported this story about Reggie Santiago.

"His second four-year enlistment ended with pride, but the transition back to civilian life wasn’t easy. Over the course of the next two years he held 11 jobs, including sales positions which he says he did well at, but life was starting to get the upper hand.

“I got into a major depression. My mom passed away and things weren’t going right. I wasn’t happy with my career, and it took my girlfriend at the time to kick me out. She said, ‘Look, you need to get your life together,’ Santiago remembered.

A chance meeting with a former Army friend got him back on track — a job training Special Operations medics awaited if he completed paramedic training, which instilled in Santiago the confidence to trust his academic abilities while relying on his military medical training.

“I was able to get into the vocational rehab program through the VA, which is how I wound up getting into nursing. I got my ADN through a paramedic to RN bridge course,” Santiago said.

And who doesn’t love a happy ending?"

Read more at:

https://news.ecu.edu/2024/05/15/army-veteran-honored-as-extraordinary-nursing-student/

Cheers!

Donna

Wednesday, September 11, 2024

A child with nephrotic syndrome grows up to become a nurse

 

Rarediseaseday.org reported this story. Grace is 23 years old and a registered nurse.

"I was diagnosed with nephrotic syndrome when I was 9, and have been in and out of remission ever since. This illness causes me to rapidly gain water weight to the point it stretches out my skin and I can barely walk. To treat it, I have been put on high doses of steroids, immunosuppressants, statins and several types of chemotherapy. These medications caused severe weight gain, frequent illnesses from low immunity, hair loss, acne, and more. When I was 15, I wrote a patient guide for newly diagnosed Nephrotic syndrome patients that was published by an international nonprofit dedicated to raising awareness for the disease. 

I also did a research project when I was 17. I surveyed patients from different countries on their side effects of the medications they had to take, and the effects of those side effects on their emotional health then presented the results at a symposium. 

I decided to become a nurse because I know what it’s like to be in the hospital for weeks at a time and suffer from the side effects of the many medications Nephrotic syndrome patients must take. Side effects are a whole other disease itself." 

From Nephrotic to Nurse - Rare Disease Day 2025

Cheers!

Donna


Wednesday, September 4, 2024

Shone’s complex, a congenital heart defect, didn't stop this PICU nurse!

    

UI Healthcare reported this story.

Margaret “Maggie” Behounek is a nurse in the Pediatric Intensive Care Unit (PICU) at University of Iowa Stead Family Children’s Hospital who connects with her patients and their families on a personal level. That’s because she was once a patient, too.

Immediately after Maggie was born, she was transferred to UI Stead Family Children’s Hospital where doctors discovered she had Shone’s complex, a congenital heart defect resulting in the narrowing of the aorta, which carries blood and nutrients to the rest of the body. Maggie had her first surgery at 11 months old to fix her aorta. 

All told, Maggie underwent five major surgeries to fix her congenital heart defect, and she expects she will need another surgery in the coming years to fix her pulmonary valve, which carries oxygen-poor blood to the lungs. Currently, the valve leaks blood during the time the valve should be closed.

“For my first surgery they fixed the coarctation—narrowing —and sent me home. I had a valve replacement when I was 4 years old, and I did okay with that for a while. And then when I was 7 years old, I had to get the valve replaced again,” Maggie says.

At 16, Maggie’s heart and liver were enlarged, causing heart failure and the need for emergency surgery to replace the aortic valve again. At 21, she had a prosthetic valve put in that should last 10 to 15 years.

“I still have chronic heart failure, which is pretty well controlled with meds. The humidity over the summer makes me feel pretty yucky, but I’m able to live a fairly normal life,” Maggie explains. 

Visit  https://uihc.org/childrens/patient-story/maggies-story-patient-nurse to read more about Maggie.

Cheers!

Donna